Portal de Alhama de Murcia
www.portaldealhama.com
On the occasion of World Rare Disease Day, on Saturday 28 February, an act of visibility was held in the Plaza del Ayuntamiento de Alhama de Murcia.
The Association for Rare Diseases D'Genes installed an information and collaboration with the Scout Group Valle de Leyva explained to those who passed and elsewhere in this county the theme for World Day this year has been " Living with a rare disease. There is a gesture that changes everything. "
It is also invited to be supportive and make the symbolic gesture of painting a green stripe under the eye as a sign of approaching people with a rare disease.
In addition, a bouncy castle was also installed and a piggy bank for parents and families of children who rode could deposit on a voluntary donations for the association was placed.
D'Genes like to thank Caridad Lopez, coordinator of the association in Alhama de Murcia, the Valley Scout Group Leyva and leisure association Animunis that gave the inflatable for this activity, involvement and collaboration for the development of this initiative is made to coincide with World Rare Disease Day and helped bring the reality of rare diseases to many people.
Source: D´Genes
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